Monday, April 27, 2009
I have to tell you...
Saturday, April 25, 2009
BLOG BLAST...
Cailee...Denver update
Madie-the entertainer
Cailee the brave
Dental Phobia and the BIG CAHOONA
Cailee and Abby's "bow"tique
Laugh, Giggle and Roll
I hope you find something fun to read about!
(upcoming attraction...Brandon turns 3 today (Happy Birthday dude. Pics and stories to come soon)
Denver...Cailee update
The doctor's visit was very infomative. Her Nephrologist was very pleased with how Cailee physically looks right now. We talked a lot about why we weren't trying different treatments and I have a lot more confindance now that we are truly doing what we can for her. We aren't going to do a biopsy because all it would do is give her Nephrotic Syndrome and specific name, such as FSGS, ect. It's not worth the pain to "give it a name". We wouldn't be treating it any different if it had a specific name. She talked more in depth about what the future may hold. I asked about what percentage of kids like Cailee have to have a transplant by the time they are teenagers and she said about 60%. That sounds a lot more promising. She also said that with the other 40% that some of those go on to treat the symptoms and live normal lives for a really long time. I am now praying she's in that 40%. We talked about a number of things and I feel like it's not so gloom and doom at this point.
Unfortunately we will be adding more meds to the list that she's already taking. The last blood work came back saying she has a really high cholesterol level. Hers was 303 and they normally don't like kids to go over 150. Unfortunately because it's from the NS, it can't be changed with a diet. She said that even if Cailee was on the strictest diet possible, it still wouldn't change it. So we have to turn to modern medicine. Her Neph. said that if we don't start treating it now that she will be facing heart disease by the time she's in her 20's/30's. I think we'll get a head start and avoid that. I don't like the fact that it's one more medicine, but I think it's better than the alternative.
Overall, we were happy with the appt. Afterwards we went and checked into the hotel. (Thanks Fairy Godmother for all your help...you are awesome!) Once settled we went and ate dinner at Applebee's. It sure was yummy! We went shopping for a bit at the mall...which of course I love to do! After I took Cailee swimming while my Mom relaxed with Madie. We had a great time and I'm glad we had a chance to sit down and talk with her doctor face to face.
Madie...the entertainer
Madie was our dinner entertainment Wednesday night. We aren't sure where she picked up this little trick from, but we couldn't stop laughing (as you will hear the kids in the background). My mom was here visiting (for our Denver trip) so she got to see "the show"!
Cailee the brave
Dental-Phobia and the BIG CAHOONA
So I have to admit that I hadn't been to the dentist for a LONG time. I haven't had any teeth hurting, so I haven't had a very good reason to go. Well, a little while before Christmas I was eating and felt something in my mouth...it was part of a TOOTH. I couldn't believe it. Part of one of my back teeth broke off. It hurt at first, but I am petrified of going to the dentist, so I used the numbing stuff for a few days. It eventually stopped hurting unless I got food stuck in the hole, so I mainly chewed food on the other side of my mouth. Well, a few weeks ago I got food stuck in it and had been using dental floss a lot to get it out of my teeth. Blake decided it was time to go to the dentist. We have an awesome family in our ward and the husband happens to be a dentist. They are really nice, so I finally called in and made an appointment. It was so hard to make that phone call...why is it so hard to pick up a phone for stuff like that...I sure don't know.
Before my appointment Blake, my mom and I made wagers on how many cavities I would have. Blake and my mom decided on 3...I said 5. Lucky for me we were all wrong. I had NO cavities except the BIG CAHOONA. Shock of the century. I couldn't believe it. I got my teeth cleaned, which I don't ever remember it hurting so much. I really like the dental hygienist though...she's so nice. She promised it wouldn't hurt so bad next time since I won't wait so long to get them cleaned again. I also had the dreaded bite-wing x-rays taken. I have to admit that I'm a gagger. I have a pretty small mouth, so those things hit the back of my mouth and I'm a gonner.
So with the BIG CAHOONA...I went back for another apt. to see what was going to need to be done. My dentist numbed my mouth and did whatever it is they do to get all the decay out and found out I have to have a ROOT CANAL done...that's right. I will need to go to a specialist to get it done because of where it is located. So I hear this procedure takes about 2 hours. Two hours with someones hands in my mouth. YOU HAVE TO BE KIDDING ME! One of my biggest problems with going to the dentist is I feel like I can't breath very well and sometime I get panicky. Well, true confession-that's about all I think about when I'm getting something done...so I'm actually get panicky most of the time. I have really small nostrils and I'm a mouth breather at night anyways, so the thoughts of having to breath through my nose most of the time while I lye there scares me to DEATH...not to mention the two hours it will take. I've contemplated having it pulled out since that won't take so long, but I think, at least momentarily, that I've talked myself into keeping the tooth. The appointment was set to be done in a few weeks, but the dentists office called and they have an opening on Monday. I thought I better take it before I talk myself out of it. Wish me and the BIG CAHOONA good luck. I hope I make it out of this one without heart failure:)
Cailee and Abby's "bow"tique
The other day Cailee and Abby were having quiet time in there room. They were being really quiet (it doesn't always happen that way). I soon found out why they were being so quiet...
view pictures below:
Laugh, Giggle and Roll
Madie showing how good she is at rolling over!
Sunday, April 19, 2009
Easter...only a week late
I've been a bit busy this past week and haven't gotten a post done about Easter. Friday night before Easter we dyed eggs as a family. It was fun watching the kids dye theirs. Blake and I each dyed one for fun! It's always a great time doing fun kid things once in a while. The kiddos had a great time too. Saturday we went to our wards Easter party. It was going to be outside, but Mother Nature had other plans. So, we had it at the church. I think the kids had a great time...they did a luncheon and had an Easter egg hunt. Brandon got to go with the younger kids thank goodness. The poor guy started fevering while we were there. He didn't eat any of his food, so when we got home we gave him IB Profin to help with the fever. By that night we decided we should take him to the doctor (after talking to my sister to see what the symptoms of strep were) and got him in about 7:30. They did a strep test and it came back negative. The doctor said he had viral tonsillitis. He said he was contagious and that it would be about five days before he felt better. So Easter Sunday Daddy was wonderful and stayed home with him while the girls and I went to church. That morning the kids had a little egg hunt in the house...the Easter bunny thought it was a little too wet outside. So Brandon got to enjoy that at least. Unfortunately he threw up shortly after breakfast so we didn't get any pictures of the kids in their Easter stuff that day (He never wore his). The girls looked adorable though. Today I had them wear their dresses again and we took a few pictures of the kiddos together. All in all we had a great Easter. It was fun to see the girls understand the true meaning of why we celebrate Easter. When we asked them what it was they said,"it's because Jesus was resurrected so we can live with Heavenly Father again." So sweet.
The best part:
Friday, April 10, 2009
The Big 3-0
Hun-First of all...Happy Birthday! Don't worry...I still feel like I'm married to a 29 year old:) Second-I am so grateful for EVERYTHING you do for me. I know I wouldn't make it through the day without you. Thanks for making me laugh and laughing with/at me when I'm a little "wierd" (you know what I mean). Thanks for being there when I need a hug and a shoulder to cry on when times get tough. Thanks for being my best friend. I know I don't always show it, but I am so grateful for YOU! Love ya!
This is what 30 candles looks like!
Sunday, April 5, 2009
Color-Pink
Food-Yogurt, suckers...I love everything (or so she says)
Song-I Am A Child of God
Book-Princess stories
Movie-Barbie and the Diamond Castle
Abby is our little adventerous girl. She's very curious and loves to find out how this life works. She brings so much joy to our family...her laugh makes us laugh, her smile lights up the room. She has been known to "get into things" and climb like a monkey. She started out so tiny and fragile...now she's our little giant. We love you Abby and are so happy you are part of our family!