Thanks...to everyone!

I just wanted to thank everyone for their comforting words and support. I know that no matter what the outcome is with Cailee that we will always have the support of family and friends. Thank you for that. We really appreciate all the love and support we have received through this trial.

I've wanted to post for a while, but our computers are on the fritz and not working, so I'm at a friends house...(thanks my friend:) on her computer. I don't know how long it will take for our computer issue to be fixed, but we are hoping to figure something out soon.

I just want those of you who are keeping us in your prayers to know our gratitude. We are truly blessed to know each of you. Thank you.

Disappointed

Cailee's pediatrician called tonight and said he had gotten the results from the urine test. They weren't what we were hoping for. Her protein level was extremely high, infact, it was higher than the last test. I tried not to let myself get too excited, but when we heard her white blood cell count was down from the blood test, I couldn't help but be excited...with it being our first bit of good news since all this started. The Retuximab did attack the white blood cells, but we found out that if it wasn't the antibodies from the blood cells that caused the NS that it wouldn't do any good anyways. We are hoping that it was the cause and that her protein level drops in the next month as her body starts to rebuild new antibodies. We still have another month before we know the final verdict, so we'll find a way to bring a bit of hope back. Hope for the best, plan for the worst and pray is about all we can do at this point.

It's just getting hard having excitement shattered by disappointment. I was really hoping there would be at least a little bit of a drop. I know that she is in Heavenly Father's hands and He knows what is Cailee's plan here on the earth. I have to trust now in Him. Please keep my little girl in your prayers and thank you to those of you who have already done so and continue to. We are so blessed with wonderful families and friends who keep hope alive when it's so hard to do ourselves.

Good-bye Prednisone!

This New Years Eve we had more to celebrate than just ringing in the new year...Cailee took her last dose of Prednisone!! We are happy to say good-bye. It's crazy to think that it has taken so long to get her off of it. She started taking it in June and we are so happy to be done. It was hard to continue to give it to her when it wasn't doing anything for her. She's happy that she doesn't have to take it anymore...it doesn't taste the best. She was so good about taking it though and we are so proud of her. We were so shocked the first time she wanted to try swollowing it on her own. When we first started out we had to crush it and smother it with Hersheys Chocolate Syrup. I remember we were visiting my parents over the summer and we went to give it to her one morning and asked if she could try it. She swolled it right away.

She continues to do well with her blood pressure pills. I wish we could see an end to those, but we are still fighting high blood pressure. We need to talk to her doctor about it next time we go in.

We got the results back from the blood work and they are good!! The white blood cell count was down where we wanted it to be and her doctor (and Blake and I) are very pleased with the count. It's showing that the infusion attacked the right blood cells!! YEA...our first bit of good news. This week we have to take her in to the Pavilion Lab for another urine sample. Hopefully this will bring good news. With the blood results so good, we are getting more anxious to see. It's been three weeks since her last infusion, so we still have three to five more weeks to see results.

Thank you to all those who have kept her in your prayers. I know they are helping and we feel so blessed.